CHANDIGARH, 23.02.25-On the occasion of Rare Disease Day, ORDI in collaboration with PGI Chandigarh organized a remarkable event—Race for 7, a unique walkathon aimed at raising awareness about rare diseases on 23rd Feb'2025. The event commenced from the renowned PGI Bhargav auditorium after flag of by Dean Sir Prof. R. K Ratho and concluded at the scenic Sukhna Lake, bringing together participants, families, medical professionals, and advocates of rare disease awareness.
The walkathon was graced by three distinguished persons: Dean academics PGI Chandi Bhavne Prof. Bhavneet, Principal, BR Ambedkar Institute,Mohali and Mr Vikas Bhatia from MERD India Foundation. Dr Inusha Panigrahi, Professor and unit head, Genetic metabolic unit, a leading expert in rare diseases had taken the initiative with ORDI Indis for a noble cause. Their presence added immense value to the event, as they highlighted the importance of early diagnosis and the need for better healthcare policies to support those affected by rare genetic conditions.
The day was filled with enthusiasm and solidarity as hundreds of participants walked in unison, wearing vibrant T-shirts and holding banners advocating for rare disease awareness. The event was aimed also to inspire compassion and a sense of community belonging among people affected by rare diseases. The walk concluded with a message of hope, as the collective spirit of the participants illuminated the fight for better resources and support for those battling chronic rare diseases.
The success of the Walkathon was a testament to the growing commitment toward rare disease advocacy in India after formation of the National Rare disease policy.